Chemo

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Chemo. That’s it.  That’s all I have to say and everyone’s heart breaks and they picture hairless, sickly looking little kids.  Dammit.

 

Today was much a repeat of Friday but with even worse news ending the day.  There was lots of “okay, we can deal with that, that’s not so bad” followed by “say what?”.  There was a period I am not proud of where I could not look another human being in the eye or utter more than a couple words for over an hour.  Even I thought I might need some hospital intervention myself at that point.  It was weird – I could hear Jake and Mary and Nikki talking about being worried about me and maybe they should ask the docs for a sedative for me but I couldn’t answer.  Pretty sure that was classic shock.  That was right after they said he had tumors in both eyes.

 

What we know is that he has the large tumor in his left eye that we knew about on Friday, and he has a slightly smaller but also “decent sized” (as the doctor said) tumor in his right eye but it is not in the field of vision.  We also do not have the final MRI results but from the rough reading it appears the pineal gland is enlarged which has all of us, including the doctors, concerned.

 

So they no longer want to remove the left eye, because now that there are tumors in both eyes they want to do chemo to see if we can save both eyes so that he has a chance to see out of at least one of those eyes for the rest of his life.

 

Here is what we know will happen next:

*when he has 24 hours without a fever (stupid cold!) he will get admitted to the hospital to get a port put in that will stay in and is a place he will get the chemo drugs inserted, blood tests, etc for the next 5+ months – probably Thursday or Friday of this week

*at the same time he is in the hospital for the port they will run every test imaginable to get a base-line of things to compare to after cycles of chemo

*they will do a lumbar puncture to see if the cancer has spread

*after this hospital round, we will likely be in the hospital for 2-3 days every 3 weeks for the next 5 months or so doing cycles of chemo

 

After all that, while we are in the hospital this weekend, we will meet with the Oncologist team again and come up with a specific plan for chemo based on all those test results.  Then he will start chemo.  Let me repeat that for effect.  He will start chemo.  This is my baby.

 

So, to be clear, here is what we are hoping for at this point:

*no spreading of the cancer!!!! Yes, it needed to be spelled out that this is something we don’t want.

*chemo works – they will do tests again after the first 3 week cycle of chemo and we are hoping for tumor reduction but we will also accept the tumors staying the same size.  If the tumors get bigger or cancer spreads, then we will likely have to try something harsher and more toxic than chemo.  Yeah, didn’t know that existed did ya?  This would be super-toxic chemo where the body is brought back from the brink of death by a stem cell transplant.

 

I think that sums it up.  No cancer spreading, this chemo works.  Focus all your energies people.  And buckle your seatbelts – this is going to be a long and bumpy ride on what we call “This Is Our Life Now”.

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6 responses »

  1. You don’t know me but I saw your post on Nate’s wall, and started following your blog. I can’t even imagine what you are going through, or even pretend to do so. All I can do is offer you thoughts, and prayers, and well wishes. I don’t know what else to say except I’m sorry for what you and your family are going through, and I wish nothing but good health for your beautiful boy.

    • Lisha – I continue to be amazed and in awe that Wes’ story is drawing in and moving strangers. Thank you for taking time out of your day to read his story and send us positive energy.

  2. I dont know u or ur family but im friends with heather and thats were i read ur families story. I have three kids myself and i just cant imagine what i would do if i got the news u got about ur son. Reading ur story broke my heart i will be praying for ur family as wes goes through his treatment and hoping that at the end of this he will be cancer free

    • Stacy – thank you for taking time to get to know us through this blog. I would never wish this on my worst enemy. If a part of what comes out of this is spreading the word about Childhood Cancer, then my blog is worth it.

  3. Hi Angie, Jake & Wes. When I heard about all this I was just shocked. I am so sorry you have to go through this, my thoughts and prayers are with you guys at this time. I second what Kim B. said about the way you are handling everything. Talking about it and not holding it in is good for the soul so you can stay strong for Wes. I commend you for that!! Know that Bailey (poogle) and I are here for you guys and Love ya!!!

    • Theresa – thank you for taking time to leave a comment. The blog is cathartic for me, and a way to keep everyone up to date on what is happening with Wes. Thank you for following his story and sending positive energy our way!

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