You. You are one of Wes’ Warriors. Someone coined that term a few days ago, I don’t remember who, but I like it!
Just by taking 5 minutes to read this, to visit this blog, to be a member of the Facebook Group Wes Is Kicking Cancer, you are one of Wes’ Warriors.
You are vital to our lives. We don’t know what we would do without all of you.
After we learned Wes had cancer in his left eye, to the point that he has little to no vision in that eye, on that fateful Friday (9/7/12) I had to make a lot of difficult calls to tell our closest friends and family what was happening. How do you say that to people? How do people react? There is no right or wrong.
By Sunday, 9/9/12, a lot of people knew what was going on.
So when we went in for more testing on Tuesday, 9/11/12, it was you that helped us get through that day being told that the cancer was in both eyes and the rough MRI reading showed the pineal gland was enlarged (the pineal gland having a tumor is what would make this trilateral retinoblastoma rather than bilateral, and is a much more devastating diagnosis).
I felt that all of your positive energy, positive thoughts, well wishes were holding us up, keeping us from falling all the way to the floor flat on our faces. Like we were crowd surfing. It was life-saving to us, to know that there was this barrier between us and the absolute bottom.
Then on Thursday, 9/13/12, things started looking up! We had gotten news on Wednesday that the final read of the MRI showed that the pineal gland was enlarged but well within the normal limits and there was no indication of trilateral retinoblastoma at this time! On Thursday, there was a lot of positive cosmic energy surrounding us. 13 is my husband’s lucky #, and his sister’s lucky #. We were assigned to room 13 in the pre/post-op area for the day on Thursday. In that room, there were two ceiling tiles that were painted by kids – both of those tiles mentioned a place in Michigan (Lake Michigan and the Mackinaw Bridge) and we have a lot of family ties to Michigan on both sides of our family and have some great vacation memories together of trips to Michigan. Those tiles could have been from any state or had no mention of any state, but they were from Michigan. And when we thought about it, Wes’ birthday has a 13 in it as well (1/31/12). As I said, lots of positive cosmic energy.
Thursday he got his Hickman central line put in. I was really nervous to see him after the surgery, but it really wasn’t as bad as I thought it would be. The doctors all said things went great. He also got a lumbar puncture to check his spinal fluid to be sure the cancer hadn’t spread.
Friday was covered in another post, but just to summarize the overall feeling of the day – every doctor and nurse we came into contact with loved Wes and had an overwhelmingly positive attitude towards his prognosis. Some of it was in what they said, some of it was in what they didn’t say. His lumbar puncture was clear, and we had a path to follow to get him through this.
And this is where you come in. You held us up, prevented us from utter despair from Friday to Thursday. Now, now my sense is that you are behind us, pushing us, willing us to keep moving forward. Helping us finish this marathon.
We are floored that so many people are caught up emotionally with us – crying when we cry, laughing at the videos of Wes dancing and playing in the hospital. And telling other people! We have people on multiple continents and all across the US rooting for Wes!
We will stay up on the blog and keep you all posted on what is going on with Wes each day. Tomorrow I will post about what Wes’ exact treatment plan is. Jake is going to work on getting a map up to show where all of Wes’ Warriors are from. Is there anything else you want to know?
And keep those t-shirts coming! The first t-shirt quilt is done and Wes loves it like he has never loved another blanket.
Check the Facebook Group Wes Is Kicking Cancer – fun videos and pics of him over the last week are on there. I will continue to work on getting them on here as well.
Thank you. Thank you for riding this roller coaster of emotion with us.