So that’s it.
Today I go back to work officially.
Wes had his central line removed last week. He is now 3 1/2 weeks out from his last round of chemo so there are no concerns with needing blood products and his counts are all good and should stay that way. He had that central line for almost half of his life. We don’t know what to do with ourselves not having to flush the line every day and change the dressing once a week and worry about him pulling it out while playing!
When we were told he would need 6 months of chemo, it felt like everything was moving in slow motion but also flying by all at the same time. We barely had time to register Wes’ diagnosis before chemo started. The first few treatments seemed to drag on – we were just taking things day by day. Now I can hardly believe it’s been almost 6 months!
Every day Wes learns something new. Yesterday he learned how to put the blocks into the side of his Alphabet Train. Last week he started putting yogurt on his spoon and getting it into his mouth. Two weeks ago he learned how to get back down off the ottoman once he climbed on. He has two “words” now – he says “e-i-e-i” when you sing Old McDonald, and he says “yaaaaaaay” when you clap and say “yay” for him. He isn’t walking just yet, but he is close. I can still vividly picture the first time he pulled himself up to a standing position – it was on our hospital stay for his first round of chemo.
So that’s it. Except it’s not.
Now we wait.
He will have another eye exam under sedation on March 28th, and every month after that for the next few years. We need to see what his body is going to do now that it has no chemo, and he had laser therapy done on the big tumor in his left eye last week so we wait and see what his body does with that. The picture below was taken after his central line was removed and he had the eye exam and laser therapy so his eyes are a bit swollen. The hope is that the laser worked and that tumor does not become active again. We also hope that as the doctors are doing his eye exams each month if they see a tiny tumor starting they can zap it with local therapy (cryotherapy or laser therapy).
The best case scenario is we ride through the next few years with minimal local therapy needed to each eye, there are no long term effects from the chemo (liver, kidney, heart, hearing, nerves in hands/feet damage), and he continues to learn and grow like a normal kid.
The worst case scenario is that one of the tumors, either an existing one or a new one, doesn’t respond to local therapy and we have to consider more chemo or eye removal.
The statistics and Wes’ body’s reaction thus far are in our favor. Plus we have all of you and your positive thoughts. Here’s to the return of the Jedi!